Patient Support Groups

Malaysian Rare Disorders Society (MRDS)

Malaysian Rare Disorders Society (MRDS) was formed in 2004, with the help and guidance of the Genetic Unit, Department of Paediatrics, University Malaya Medical Centre. MRDS is a voluntary organisation set-up to represent and look out for the welfare of individuals including their families that are affected by rare disorders.

Malaysia Spinal Muscular Atrophy Society

Malaysia Spinal Muscular Atrophy Society is dedicated to the treatment of spinal muscular atrophy (SMA), the number one genetic cause of death for infants. SMA is a neuromuscular disease that takes away the ability to move, walk, eat or breathe without assistance. An SMA diagnosis can be overwhelming, and the society provides patients and families the information and resources they need to live active, engaged, and hopeful lives today.

The Social Welfare Department

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