Patient Support Groups

1

Malaysian Rare Disorders Society (MRDS) was formed in 2004, with the help and guidance of the Genetic Unit, Department of Paediatrics, University Malaya Medical Centre. MRDS is a voluntary organisation set-up to represent and look out for the welfare of individuals including their families that are affected by rare disorders. For more information, please go to http://www.mrds.org.my

2

Malaysia Spinal Muscular Atrophy Society is dedicated to the treatment of spinal muscular atrophy (SMA), the number one genetic cause of death for infants. SMA is a neuromuscular disease that takes away the ability to move, walk, eat or breathe without assistance. An SMA diagnosis can be overwhelming, and the society provides patients and families the information and resources they need to live active, engaged, and hopeful lives today. For more information, please go to: https://wecarejourney.org

3

The Social Welfare Department (Jabatan Kebajikan Masyarakat or “JKM”) was established in April 1946. Presently placed under Ministry of Women, Family and Social Development, its strategic mission includes improving smart and strategic partnerships through cooperation with all community groups, non-governmental organisations and international agencies, and strengthening and improving the delivery of welfare services at all levels.  For more information, please go to: http://www.jkm.gov.my/